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Setting International Standards in Analyzing Patient-Reported Outcomes and Quality of Life endpoints

Setting International Standards in Analyzing Patient-Reported Outcomes and Quality of Life endpoints

Research partners

Work package 1

Andrew Bottomley

Andrew Bottomley (PhD) is a research psychologist, who works at the EORTC, in Brussels, undertaking RCTs and Health Related Quality of Life (HRQOL) research. Andrew co-leads Work Package 1.

Ingolf Griebsch

Ingolf Griebsch (PharmD, MPH, MSc, PhD) is an outcome researcher and health economist who leads the global market access team in the therapeutic area oncology at the headquarters of Boehringer Ingelheim in Germany. Ingolf co-leads Work Package 1.

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Madeline Pe

Madeline Pe, PhD, is a Specialist in Quality of Life at the EORTC and co-leads Work Package 1.

  Ahu Alanya

Ahu Alanya, PhD, is a    Specialist in Quality of Life at the EORTC Headquarters and  the project manager for the SISAQOL-IMI. Ahu Alanya co-leads Work Package 1.

Corneel Coens

Corneel Coens is currently working as a lead statistician at the EORTC Headquarters (Brussels, Belgium). Corneel co-leads Work Package 2.

Michael Schlichting

Michael Schlichting is Director Biostatistics at Merck KGaA. Global. Michael co-leads Work Package 2.

Saskia le Cessie

Saskia le Cessie is a medical statistician working at the departments of Clinical Epidemiology and Biomedical Data Sciences of Leiden University Medical Center. Saskia is co-lead of Work Package 3.

Satrajit Roychoudhury

Satrajit Roychoudhury is a Senior Director and a member of Statistical Research and Innovation group at Pfizer. Satrajit co-leads Work Package 3.

Bernhard Holzner

Bernhard Holzner, PhD, M.Eng., is a clinical psychologist, psychotherapist and clinical researcher. Bernhard co-leads Work Package 4.

Jane Chang

Jane Chang is a Senior Director of health economics and outcomes research (HEOR) in Oncology at Pfizer. Jane co-leads Work Package 4.


Martin Taphoorn
Martin Taphoorn MD, PhD, is a neurologist and professor in neuro-oncology at Leiden University Medical Center and Haaglanden Medical Center. Martin co-leads Work Package 5.


Paul Cislo
Paul Cislo is Director of Statistics at Pfizer. He co-leads work package 5.


Johannes Giesinger
Johannes Giesinger, PhD, is a clinical psychologist with a degree in biostatistics. Johannes co-leads work package 6.


Carla Mamolo
Carla Mamolo, PhD, is a health economics and outcomes research scientist at Pfizer. Carla co-leads Work Package 6.

Kristin Bjordal

Kristin Bjordal has, since 2014, been the head of the regional Research Support Services, Oslo University Hospital, Norway, and a professor and the University of Oslo. Kristin co-leads Work Package 7.

Vivek Pawar

Vivek Pawar, PhD, is an Executive Director in the Global Evidence and Value Development (GEVD) function at EMD Serono. He co-leads Work Package 7.

Jayne Galinsky

Jayne Galinsky, PhD, is head of patient evidence at Myeloma Patients Europe and honorary research fellow at the university of Stirling. Jayne co-leads Work Package 8.

Kristina Fitzgerald

Kristina Fitzgerald (MPH) is a Senior Director in the Patient-Centered Outcomes group within the Health Economic and Outcomes Research group at AbbVie. Kristina co-leads Work Package 8.

Research partners

Work package 1

Andrew Bottomley
Andrew Bottomley (PhD) is a research psychologist, who works at the EORTC, in Brussels, undertaking RCTs and Health Related Quality of Life (HRQOL) research. Andrew co-leads Work Package 1.

Ingolf Griebsch
Ingolf Griebsch (PharmD, MPH, MSc, PhD) is an outcome researcher and health economist who leads the global market access team in the therapeutic area oncology at the headquarters of Boehringer Ingelheim in Germany. Ingolf co-leads Work Package 1.

Madeline Pe
Madeline Pe, PhD, is a Specialist in Quality of Life at the EORTC and co-leads Work Package 1.

Ahu Alanya
Ahu Alanya, PhD, is a Specialist in Quality of Life at the EORTC Headquarters and the project manager for the SISAQOL-IMI. Ahu Alanya co-leads Work Package 1.

Corneel Coens
Corneel Coens is currently working as a lead statistician at the EORTC Headquarters (Brussels, Belgium). Corneel co-leads Work Package 2.

Michael Schlichting
Michael Schlichting is Director Biostatistics at Merck KGaA. Global. Michael co-leads Work Package 2.

Saskia le Cessie
Saskia le Cessie is a medical statistician working at the departments of Clinical Epidemiology and Biomedical Data Sciences of Leiden University Medical Center. Saskia is co-lead of Work Package 3.

Satrajit Roychoudhury
Satrajit Roychoudhury is a Senior Director and a member of Statistical Research and Innovation group at Pfizer. Satrajit co-leads Work Package 3.

Bernhard Holzner

Bernhard Holzner, PhD, M.Eng., is a clinical psychologist, psychotherapist and clinical researcher. Bernhard co-leads Work Package 4.

Jane Chang

Jane Chang is a Senior Director of health economics and outcomes research (HEOR) in Oncology at Pfizer. Jane co-leads Work Package 4.

Martin Taphoorn
Martin Taphoorn MD, PhD, is a neurologist and professor in neuro-oncology at Leiden University Medical Center and Haaglanden Medical Center. Martin co-leads Work Package 5.

Paul Cislo
Paul Cislo is Director of Statistics at Pfizer. He co-leads work package 5.

Johannes Giesinger
Johannes Giesinger, PhD, is a clinical psychologist with a degree in biostatistics. Johannes co-leads work package 6. 

Carla Mamolo
Carla Mamolo, PhD, is a health economics and outcomes research scientist at Pfizer. Carla co-leads Work Package 6.

Kristin Bjordal
Kristin Bjordal has, since 2014, been the head of the regional Research Support Services, Oslo University Hospital, Norway, and a professor and the University of Oslo. Kristin co-leads Work Package 7.

Vivek Pawar
Vivek Pawar, PhD, is an Executive Director in the Global Evidence and Value Development (GEVD) function at EMD Serono. He co-leads Work Package 7.

Jayne Galinsky

Jayne Galinsky, PhD, is head of patient evidence at Myeloma Patients Europe and honorary research fellow at the university of Stirling. Jayne co-leads Work Package 8.

Kristina Fitzgerald

Kristina Fitzgerald (MPH) is a Senior Director in the Patient-Centered Outcomes group within the Health Economic and Outcomes Research group at AbbVie. Kristina co-leads Work Package 8.

Research partners

Work package 1

Andrew Bottomley

Andrew Bottomley (PhD) is a research psychologist, who works at the EORTC, in Brussels, undertaking RCTs and Health Related Quality of Life (HRQOL) research. Andrew co-leads Work Package 1.

Ingolf Griebsch

Ingolf Griebsch (PharmD, MPH, MSc, PhD) is an outcome researcher and health economist who leads the global market access team in the therapeutic area oncology at the headquarters of Boehringer Ingelheim in Germany. Ingolf co-leads Work Package 1.

Madeline Pe

Madeline Pe, PhD, is a Specialist in Quality of Life at the EORTC and co-leads Work Package 1.

Ahu Alanya

Ahu Alanya, PhD, is a Specialist in Quality of Life at the EORTC Headquarters and the project manager for the SISAQOL-IMI. Ahu Alanya co-leads Work Package 1.

Corneel Coens

Corneel Coens is currently working as a lead statistician at the EORTC Headquarters (Brussels, Belgium). Corneel co-leads Work Package 2.

Michael Schlichting

Michael Schlichting is Director Biostatistics at Merck KGaA. Global. Michael co-leads Work Package 2.

Saskia le Cessie

Saskia le Cessie is a medical statistician working at the departments of Clinical Epidemiology and Biomedical Data Sciences of Leiden University Medical Center. Saskia is co-lead of Work Package 3.

Satrajit Roychoudhury

Satrajit Roychoudhury is a Senior Director and a member of Statistical Research and Innovation group at Pfizer. Satrajit co-leads Work Package 3.

Bernhard Holzner

Bernhard Holzner, PhD, M.Eng., is a clinical psychologist, psychotherapist and clinical researcher. Bernhard co-leads Work Package 4.

Jane Chang

Jane Chang is a Senior Director of health economics and outcomes research (HEOR) in Oncology at Pfizer. Jane co-leads Work Package 4.


Martin Taphoorn
Martin Taphoorn MD, PhD, is a neurologist and professor in neuro-oncology at Leiden University Medical Center and Haaglanden Medical Center. Martin co-leads Work Package 5.


Paul Cislo
Paul Cislo is Director of Statistics at Pfizer. He co-leads work package 5.


Johannes Giesinger
Johannes Giesinger, PhD, is a clinical psychologist with a degree in biostatistics. Johannes co-leads work package 6.


Carla Mamolo
Carla Mamolo, PhD, is a health economics and outcomes research scientist at Pfizer. Carla co-leads Work Package 6.

Kristin Bjordal

Kristin Bjordal has, since 2014, been the head of the regional Research Support Services, Oslo University Hospital, Norway, and a professor and the University of Oslo. Kristin co-leads Work Package 7.

Vivek Pawar

Vivek Pawar, PhD, is an Executive Director in the Global Evidence and Value Development (GEVD) function at EMD Serono. He co-leads Work Package 7.

Jayne Galinsky

Jayne Galinsky, PhD, is head of patient evidence at Myeloma Patients Europe and honorary research fellow at the university of Stirling. Jayne co-leads Work Package 8.

Kristina Fitzgerald

Kristina Fitzgerald (MPH) is a Senior Director in the Patient-Centered Outcomes group within the Health Economic and Outcomes Research group at AbbVie. Kristina co-leads Work Package 8.

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