Setting International Standards in
Analysing Patient-Reported Outcomes
and Quality of Life Endpoints

Project Timeline

SISAQOL-IMI launched in January 2021 and will run for four years and include 5 consensus meetings culminating in final consensus recommendations in 2025.

Key Work Package Milestones

Milestone names Related WPs Due dates (in months)
Project kick-off meeting (Consensus meeting 1) 1 Due Date (in months): 2
Consortium web-based workspace available to all partners 1 Due Date (in months): 1
Members of independent scientific advisory board and ethics board involved 1 Due Date (in months): 3
Consensus meetings organised (Consensus meetings 2 to 5) 1 Due Date (in months): 14, 26, 38, 44
Stackeholder discussions and literature review report for RCTs 2 Due Date (in months): 14
Initial RCT recommendations with pilot study results2 2 Due Date (in months): 26
Stakeholder discussions and literature 3 Due Date (in months): 14
Initial Single-arm recommendations with pilot study results 3 Due Date (in months): 26
Stakeholder discussion and literature review report for communication tools 4 Due Date (in months): 14
Stakeholder discussion and literature review report for communication tools 4 Due Date (in months): 26
Availability of dynamic webtool 4 Due Date (in months): 44
Pilot and case studies identified 5 Due Date (in months): 6
Case study database available on website 5 Due Date (in months): 46
Stakeholder discussions and literature review report for clinically meaningful change 6 Due Date (in months): 14
Template for consensus surveys 7 Due Date (in months): 6
Proposed consensus statement drafted from relevant scientific WPs 7 Due Date (in months): 12, 22, 36, 42
Consensus meeting reports 7 Due Date (in months): 3, 15, 27, 39, 45
Final report on international consensus recommendations including a layperson version 7 Due Date (in months): 48
Project website up and running 8 Due Date (in months): 6
Educational workshop organised 8 Due Date (in months): 30
Availability of educational tools and resources on 8 Due Date (in months): 44

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